“Enzo, at 22 months, started to have daily fevers. We couldn’t figure out why, and neither could the doctors. Eventually, after hospital stays and many pediatrician appointments, they ordered a bone marrow biopsy. The results quickly showed us that Enzo had JMML...
Four year old Luna has cancerous brain tumors and is currently undergoing chemotherapy and radiation. The type of tumor she has is called Ependymoma, between a stage 2-3. This type of tumor mostly occurs in young children, and can form in the brain or spinal cord. She...
Our son Benjamin (He goes by Isaac, his middle name) was a perfectly healthy 7 year old boy. Out of nowhere he was diagnosed with acute liver failure on 11/19/2018. Reason for failure was idiopathic. That week he was put on the UNOS organ donor status A1 waiting for...
Hello, I’m Trina. My daughter, Annalisa, was diagnosed with Cystic Fibrosis as a small child. She does have other life threatening diagnosis as well. Looking at her, you’d never know her daily struggles with her health. She stays as positive as she can. She is my...
Four year old Jaxson has a rare lung disease called Idiopathic Pulmonary Hemosiderosis that cause his lung to hemorrhage. The doctor have given him a terminal diagnosis and he is currently on hospice care. After hearing about Hearts of Hope Network, Jaxson’s...
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