Stories to Inspire

Ben is currently undiagnosed, and he is the first in the world to be Benjamyn. He is breaking ground with his medical conditions and possible diagnosis of Mosaic Klinefelters. His DNA is currently in Mayo Clinics Cryostorage and will continue to be analyzed yearly until a link or similar case is found.

Ben is currently undiagnosed, and he is the first in the world to be Benjamyn. He is breaking ground with his medical conditions and possible diagnosis of Mosaic Klinefelters. His DNA is currently in Mayo Clinics Cryostorage and will continue to be analyzed yearly until a link or similar case is found.

Ben is currently undiagnosed, and he is the first in the world to be Benjamyn. He is breaking ground with his medical conditions and possible diagnosis of Mosaic Klinefelters. His DNA is currently in Mayo Clinics Cryostorage and will continue to be analyzed yearly until a link or similar case is found.

Addisynn (Addi) was born with congenital heart disease and is now in stage 5 kidney failure requiring dialysis. Her family is waiting to see if she is a candidate for a heart and kidney transplant. Addi is the youngest of four girls. Her mom and dad are a young couple wrestling to balance life with all the girls along with multiple surgeries, sicknesses, and the medical needs of Addi. Already, Addi has had three open-heart surgeries. One surgery resulted in a brain injury and she went into kidney failure shortly after. It was an eventful time of sickness, cardiac arrest, and ECMO.

written by Hazley's mother, Tammy We are a happy, busy family of five! Jaxton is almost 6, Maverick is almost 4 and Hazley is 2.5 years old. On Thursday, March 19th, 2020, when Hazley was 17 months old, my...

written by Alyvia's mother, Krysta In March 2019, Che and I found out we were expecting a baby. We were beyond excited! In May, we found out we were having a little girl. We decided to name her Alyvia Rose...

Jackson was born with half a heart. He has congenital heart defects, pulmonary hypertension, and double inlet left ventricle. He has had 5 open heart surgeries so far. He has 3 siblings and one on the way who...

Written by Maeve's mother. On May 22, 2018, our world was rocked. Our 6 year old daughter, Maeve, was diagnosed with Acute Lymphoblastic Leukemia after a week of fevers and pallor. At the time, Maeve was a...

Adriana was diagnosed with a rare liver cancer, Hepatocellular carcinoma (HCC), in July of 2019. Her mother fought for a diagnosis after two weeks of taking Adraina to the emergency room with swelling of the...

At five days old, Treyvon was diagnosed with congenital heart defects (CHDs). Two days later he underwent his first life-saving open heart operation. Has multiple defects and in just two years, this toddler...

Logan was born with Down Syndrome and has congenital heart defects (CHD), atrial septal defects (ASD) and ventricular septal defects (VSD). His g-tube will be able to be taken out at the end of January. With...

Scarlett is a toddler with acute lymphocytic leukemia. She was diagnosed in May of 2018 and has been undergoing treatment. She is now in maintenance with her treatment. She has three siblings and two loving...

Nine years ago, when Jack was a toddler, he was diagnosed with leukemia. He fought cancer bravely with his family by his side, and after three and a half years, Jack finished his treatment plan. That was in...

At 3 days old Elisha (Eli) was taken to the hospital for difficulty breathing. They determined that he had paralyzed vocal cords. Vocal cord paresis effects his breathing, eating and could potentially effect...

Patrick has Neuroblastoma, a childhood cancer/tumor found in his chest cavity (very rare). The tumor is attached to his aorta and spine. Patrick has had one surgery at 5 months old, and it has since tripled...

Almost 2-month-old Mazie was diagnosed with Pulmonary artesia with intact ventricular septum (hypoplastic right heart syndrome). She has been in the hospital since birth, having multiple heart procedures and...

Four-year-old Isaac has been diagnosed with Leukemia. He was diagnosed with Acute Lymphoblastic Leukemia two weeks before his second birthday and is currently in the home stretch of his treatment plan. His...

Five-year-old Ryan has been diagnosed with Leukemia. Ryan is the middle child of two siblings, with another sibling on the way. His mother is expecting her youngest baby this winter. She takes Ryan to all of...

"Enzo, at 22 months, started to have daily fevers. We couldn’t figure out why, and neither could the doctors. Eventually, after hospital stays and many pediatrician appointments, they ordered a bone marrow...

Four year old Luna has cancerous brain tumors and is currently undergoing chemotherapy and radiation. The type of tumor she has is called Ependymoma, between a stage 2-3. This type of tumor mostly occurs in...

Our son Benjamin (He goes by Isaac, his middle name) was a perfectly healthy 7 year old boy. Out of nowhere he was diagnosed with acute liver failure on 11/19/2018.  Reason for failure was idiopathic.  That...

Hello, I’m Trina. My daughter, Annalisa, was diagnosed with Cystic Fibrosis as a small child. She does have other life threatening diagnosis as well. Looking at her, you’d never know her daily struggles with...

Four year old Jaxson has a rare lung disease called Idiopathic Pulmonary Hemosiderosis that cause his lung to hemorrhage. The doctor have given him a terminal diagnosis and he is currently on hospice care....