Meet Benjamyn’s Family

Meet Benjamyn’s Family

Ben is currently undiagnosed, and he is the first in the world to be Benjamyn. He is breaking ground with his medical conditions and possible diagnosis of Mosaic Klinefelters. His DNA is currently in Mayo Clinics Cryostorage and will continue to be analyzed yearly until a link or similar case is found.

Meet Addi’s Family

Meet Addi’s Family

Addisynn (Addi) was born with congenital heart disease and is now in stage 5 kidney failure requiring dialysis. Her family is waiting to see if she is a candidate for a heart and kidney transplant. Addi is the youngest of four girls. Her mom and dad are a young couple wrestling to balance life with all the girls along with multiple surgeries, sicknesses, and the medical needs of Addi. Already, Addi has had three open-heart surgeries. One surgery resulted in a brain injury and she went into kidney failure shortly after. It was an eventful time of sickness, cardiac arrest, and ECMO.

Meet Hazley’s Family

Meet Hazley’s Family

written by Hazley’s mother, Tammy We are a happy, busy family of five! Jaxton is almost 6, Maverick is almost 4 and Hazley is 2.5 years old. On Thursday, March 19th, 2020, when Hazley was 17 months old, my husband felt a large lump on the side of her stomach...
Meet Alyvia’s Family

Meet Alyvia’s Family

written by Alyvia’s mother, Krysta In March 2019, Che and I found out we were expecting a baby. We were beyond excited! In May, we found out we were having a little girl. We decided to name her Alyvia Rose Parker. All of our appointments showed she was growing...
Meet Jackson’s Family

Meet Jackson’s Family

Jackson was born with half a heart. He has congenital heart defects, pulmonary hypertension, and double inlet left ventricle. He has had 5 open heart surgeries so far. He has 3 siblings and one on the way who has also been diagnosed with a heart defect.  We are a...
Meet Maeve’s Family

Meet Maeve’s Family

Written by Maeve’s mother. On May 22, 2018, our world was rocked. Our 6 year old daughter, Maeve, was diagnosed with Acute Lymphoblastic Leukemia after a week of fevers and pallor. At the time, Maeve was a runner and new to TaeKwon Do. She is a vibrant child...