Ben is currently undiagnosed, and he is the first in the world to be Benjamyn. He is breaking ground with his medical conditions and possible diagnosis of Mosaic Klinefelters. His DNA is currently in Mayo Clinics Cryostorage and will continue to be analyzed yearly until a link or similar case is found.
Addisynn (Addi) was born with congenital heart disease and is now in stage 5 kidney failure requiring dialysis. Her family is waiting to see if she is a candidate for a heart and kidney transplant. Addi is the youngest of four girls. Her mom and dad are a young couple wrestling to balance life with all the girls along with multiple surgeries, sicknesses, and the medical needs of Addi. Already, Addi has had three open-heart surgeries. One surgery resulted in a brain injury and she went into kidney failure shortly after. It was an eventful time of sickness, cardiac arrest, and ECMO.