Meet Bubbie’s Family

Meet Bubbie’s Family

Ben is currently undiagnosed, and he is the first in the world to be Benjamyn. He is breaking ground with his medical conditions and possible diagnosis of Mosaic Klinefelters. His DNA is currently in Mayo Clinics Cryostorage and will continue to be analyzed yearly until a link or similar case is found.

Meet Kessler’s Family

Meet Kessler’s Family

Ben is currently undiagnosed, and he is the first in the world to be Benjamyn. He is breaking ground with his medical conditions and possible diagnosis of Mosaic Klinefelters. His DNA is currently in Mayo Clinics Cryostorage and will continue to be analyzed yearly until a link or similar case is found.

Meet Benjamyn’s Family

Meet Benjamyn’s Family

Ben is currently undiagnosed, and he is the first in the world to be Benjamyn. He is breaking ground with his medical conditions and possible diagnosis of Mosaic Klinefelters. His DNA is currently in Mayo Clinics Cryostorage and will continue to be analyzed yearly until a link or similar case is found.

Meet Addi’s Family

Meet Addi’s Family

Addisynn (Addi) was born with congenital heart disease and is now in stage 5 kidney failure requiring dialysis. Her family is waiting to see if she is a candidate for a heart and kidney transplant. Addi is the youngest of four girls. Her mom and dad are a young couple wrestling to balance life with all the girls along with multiple surgeries, sicknesses, and the medical needs of Addi. Already, Addi has had three open-heart surgeries. One surgery resulted in a brain injury and she went into kidney failure shortly after. It was an eventful time of sickness, cardiac arrest, and ECMO.

Meet Hazley’s Family

Meet Hazley’s Family

written by Hazley’s mother, Tammy We are a happy, busy family of five! Jaxton is almost 6, Maverick is almost 4 and Hazley is 2.5 years old. On Thursday, March 19th, 2020, when Hazley was 17 months old, my husband felt a large lump on the side of her stomach...
Meet Alyvia’s Family

Meet Alyvia’s Family

written by Alyvia’s mother, Krysta In March 2019, Che and I found out we were expecting a baby. We were beyond excited! In May, we found out we were having a little girl. We decided to name her Alyvia Rose Parker. All of our appointments showed she was growing...