At five days old, Treyvon was diagnosed with congenital heart defects (CHDs). Two days later he underwent his first life-saving open heart operation. Has multiple defects and in just two years, this toddler has undergone 3 open heart surgeries. Treyvons’s Heartiversary is February 13th, and his family along with all of us at Hearts of Hope Network are celebrating this little heart warrior’s journey after multiple open heart surgeries.
There are many different congenital heart defects, and every case is different. The heart defect Treyvon was diagnosed with are tricuspid atresia, coarctation of the aorta, ventricular septal defects, an atrial septal defect and transposition of the great arteries (the main arteries that carry blood away from the heart). His heart has only one ventricle, which means only one chamber within his heart that pumps blood to and from the rest of his body. This means there is less oxygen being carried through his body.
Cardiac-wise, Treyvon is doing well and is adjusting to life with multiple heart complications. He will have to continually learn his limitations when it comes to physical activity and play as those can cause extra stress on his heart. He still sees a cardiologist every three months as there is no cure for CHD. Despite this, he is a very adventurous toddler who loves to go outside, play with his two older siblings and watch Paw Patrol. His brother and sister have been big helpers and supporters of their little brother. Treyvon’s mother created #TeamTreyvon, a Facebook support group of over 1,100 members, shortly after his diagnosis, and his whole family joins in to spread awareness about CHDs.
Last month Treyvon was also diagnosed with autism. His family is still processing this diagnosis and he will be seeing a neurologist next month. He is also speech delayed and is undergoing occupational and speech therapy.
Hearts of Hope Network is here to help Treyvon’s family. Because of generous donations and support, we have sent Tony’s Hugs packages to each member of this family and are here to help throughout their journey.
Treyvons’s family is also fundraising on their own. While we are here to help, the cost of caring for a critically ill child can be very extreme. Many times, their parents have to take off work or quit working to care for their child. We thank you for supporting Hearts of Hope Network through donations, and if you would like to help support this family even further, please consider following their support links below.
Support Links:
Here at Hearts of Hope Network, every case is different and unique in its own way. We want to always be here to stand with these families in their time of need and beyond. Every donation goes toward supporting these families, and every donor is a part of showing these families that they are NOT alone.
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If you are caring for a critically ill child, we want to be with you in your time of need. Click here to apply for aid.
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